March 7th 2010
“Today I am walking at my baptism. I got a blessing a month ago and three weeks ago I started walking agan and I know that I couldn’t have done it without God’s help. Heavenly Father has bles shised me so much with so much healing. I feel so happy. I know for the first time in my life htat all this gospel is true. I know the Book of Mormon is true. I know we have a living Prophet. I know that Jesus and our Heavenly Father lives.
[My friend] Jacob just said, “Through small and simple things, greath things come to pass.” I know that this is also true. Because today I am walking at my Bapitsm and that is a huge miracle in my life!
I know that Heavenly Father loves me and he has so blessed me. Even the bad things have been blessings. Being sick has […] brought me to this church.
I walked down into into the fonte with a little help from Melissa. She had to leave the fonte for the actual baptism thogh. I sat sideways on a chair in the water and Elder George said the the prayer and then dunked me back. I FLOATED! Elder George had to push me down to get me all the way under. And then ath twas it. I came up Baptized! With the name of Christ taken upon me! I felt different than I thought I would. It wasn’t the same intensity as the blessing I got the first day. But I felt peaceful and so so happy! Everyone said I was just glowing afterwards. […] It was just the best day!”
It’s amazing to me that it’s been seven years to the day since I wrote that. Seven years since I became baptized a member of the Church of Jesus Christ of Latter-day Saints. It’s been the best the best thing I’ve ever done for myself.
The most amazing thing though isn’t that I got baptized seven years ago, though that was truly a miraculous day I never would have predicted growing up a Jewish girl in an all Jewish family. My baptism was the spark of faith that would grow, over the next seven years, into an unquenchable flame in spite of and even because of the most challenging of circumstances. Despite all the harrowing health and other challenges my faith has grown, even flourished. That is the miracle of the gospel in my life. That challenges and even the most crushing of life’s hardships haven’t blown out that flame; they’ve been the life-giving oxygen by which my faith and testimony have turned from a flickering candle to a glowing lantern.
Over the last seven years, I’ve received the Gift of the Holy Ghost, received my Patriarchal Blessing, served in many callings, received my Endowment in the Lord’s Holy Temple, became a Volunteer Temple Worker, and most recently I put on the physical name badge of the Lord as I was set apart as a Service Missionary as a Family Search Specialist. I am so blessed to have this opportunity to serve my Heavenly Father, my Savior Jesus Christ, and all my brothers and sisters. It is my hope and prayer that I will be able to serve well for at least the next 12 months from keys of my computer as I help build websites for the familysearch.org.
I am so grateful for my membership in the Church of Jesus Christ of Latter-day Saints. In a lot of ways, the past seven years have been the hardest of my life, but they’ve also been the most beautiful, fulfilling, and enriching years of my life. If these seven years have taught me anything it is this:
“And if thou shouldst be cast into the apit, or into the hands of murderers, and the sentence of death passed upon thee; if thou be cast into the bdeep; if the billowing surge conspire against thee; if fierce winds become thine enemy; if the heavens gather blackness, and all the elements combine to chedge up the way; and above all, if the very jaws of dhell shall gape open the mouth wide after thee, know thou, my son, that all these things shall give thee eexperience, and shall be for thy good.” Doctine & Covenents 122:7
And I wouldn’t have it any other way.
Six years ago today I did the single best thing I’ll ever do for myself. Going in I was really nervous, but at the same time very sure of what I needed to do and what Heavenly Father needed me to do.
Only six weeks prior I was bound to a wheelchair due to debilitating joint pain, but that day I walked on my own to feet toy all sogrens kydrome. all white. My friend was in white as well so she could help me downt he steps into deeper water only to wait shivering back at the waters edge while she watched and waited help me out again.
With a smile and a nod bewteen me and the young missionary performing the ordinance, I sat down in a chair. With a tip of the chair I was completely submerged backwards. Under the water for that split second was so serene, and as I came up out of the water I felt a inner calm, and sweet delicate peace that would never leave me.
The day was March 7th 2010. It was the day I was baptized a member of The Church of Jesus Christ of Latter-day Saints. The following Sunday I was confirmed a member of the church and received the Gift of the Holy Ghost.
The decision to get baptized has infintely blesssed my life. From the sweet calm in my soul that the Spirit brings to the love I feel for and from my Heavenly Father and my savior Jesus Christ to the life long friends I’ve made and to the knowledge have about Heavenly Father’s plan and purpsoe for me, I am so grateful to have these tender mercies in my life. And to commemorate my baptism, I painted this page in my illustrated scripture study journal.
Sitting in my bed Sunday night, I could no longer hold back my sobs. Tears flowed from my eyes, more like a raging river than a stream. My whole body shook. The emotional pain was a ocean so deep, I thought I might drown.
Sometimes it can seem easier to numb ourselves than allow ourselves to feel the depth of our own sorrows. We live in a world that offers us an endless array of ways to detach from our own human experience much of which is negative. Easy fixes.
For example, why would you ever want to feel the anguish of a bitter divorce when they can distract from those difficult emotions with the instant gratification of endless hours of Farmville instead. Why feel lonely when you can zone out in front of the television all evening. When you can mpathize with the sorrows of fictional characters instead of paying attention to your own. What else do the advertisements for alcohol and other substances teach us than to forget our problems? Hard day? Forget it with a glass of wine, a cup of coffee, or a cigarette. If we can’t feel happy all the time well then at least we can feel a little more numb, right?
For much of the last two years and in a way for most of my life, I’ve been operating under this assumption that emotional pain is to be avoided at all cost. For years I’ve been avoiding it subconsciously, not realizing what I was doing . So I’d stay up half the night talking online to perfectly nice people from across the globe I barely knew rather than facing a dark bedroom where the pain of a traumatic event might slip in through the shadows. Better to sit in the false light of energy saving bulbs than think about things that were just too painful to consider. And yet at the same time I’ve been on a journey to find a better way. Sunday night I found it.
As I completed a call with my best friend who has recently moved to Texas, I found myself getting more and more lonely and distraught. That normally would have cued me to immediately get on my computer to do something to distract me. That night was different. I decided to do an experiment. I would let myself just feel what I was feeling and see what would happen. Instead of shutting my emotions down or off, I welcomed those troubling feelings, letting them flow thorugh me on every level. I started to journal my emotions to help me both delve in and get it out of my head. But even still I felt so alone in my suffereing, it was nearly unbearable.
Then, after 10 or so minutes, the most amazing thing happened: I started to feel better not worse, and I started to feel God’s love wrapping its arms around me. I began to feel grateful for those painful feelings, because I finally started to see what was on the other side of experiencing them completely. On the otherside was peace and relief, even hope. In my journal I wrote:
Sometimes I guess I just need to let myself feel how deep my sadness goes. I wish I had someone to hold me right now. I’ve gone through so much. Over and over again. And the trauma doesn’t seem to go away. I change. My mood changes, but something in me stays with the trauma and mostly I deny myself the ability to feel what I’m gong through. But through it all there’s the sweetness of the Spirit of God. It it warm and comforting and I feel wrapped in it, it gives me permission it feel these things. To put my toe in the deep abyss of my heartache.
I know He [Christ] can heal me in ways I cannot heal myself. It takes time. It takes patience and faith and more faith. I sometimes don’t know the answer of who to be. But Christ has the answer, even if I’m not ready to receive it. […] Life is so hard sometimes. Emotions are so overwhelming sometimes. I am reaching for the light that only Christ can offer. He, and only He, is the Prince of Peace, the one who can bring me calm waters to my soul. It amazes me how deep His love for me is. How He is willing to hold all my suffering even now and again and again. Even though he bore it all already. He is always there to bear by burdens.
At the end of the day, on some level it is still easier to just numb myself, but I’m learning how that isn’t the way to feel true relief. There is so much better on the other side of our sorrows if we just let ourselves feel and endure them for a little while. Sometimes you have to go through a dark and treacherous swamp to reach the castle, and sometimes you have to sob to feel peace.
Sometimes despite all we do, it can feel like our testmonies are hanging on by a unraveling thread. It’s so easy for us as mere mortals, to get sucked into the humdrum of life. We feel out of control. We percieve ourselves as victims of either circumstances outside our control or at the mercy of other peole’s harmful decisions. How easly we forget or even give up our agency, our ability to act for ourselves, to make our own decisions, and to reep either the rewards or consequesces of our actions because we forget who we are. We forget we are children of a dvine being. We forget that Heavenly Father’s greatest power is also His greatest gift to us. We forget that just like our Father in Heaven, we too are creators.
As creators we aren’t just bystanders in the game of life. We are the players. But when it feels like we are just watching everything happen around us, we do better to remember that we have the same creative spark in us as Heavenly Father does. Whether it is exercising our ability to create human llife or singing a hymn, creativity brings us closer to the the unvierse’s preeminent creator, God.
As I said, sometimes my testimony feels like it is just hanging on. I”ve come to realize that this is a result of me ceasing to be a creator in my own life. I get caught up in fear and worry and anger, and forget to use creativity in all asepcts of my life.
I’ve decided to counteract this tendency by using creativity to enhance my testimony.
I hadn’t been able to go to the Temple of the Church of Jesus Christ of Latter Day Saints in a very long time due to one prologued hospitalization after another. To bring my focus back to the Temple, a friend and I made custom Temple Recommend Holders We used scrap paper and the We R Memory Keepesrs Photo Sleeve Fuse tool. I added sequins and a mini key inside to shake areound. I got to go to the Temple two weeks ago and it was fun to use my new holder.
I’ve had a hard time with Scripture Study lately. With all the time in the hosptial, it’s hard to stay with a good habbit. I decided I need to study and ponder the scriptures more than just read them to really have a desire to read every single day.
I decided to start an illustrated scripture journal. I’ll make an entry for my favorite scriptures I encounter each day and week. Here’s what you need to know to make your own:
Search The Scriptures
- Trim It
- Affix Your Verses
Mark It Up
- Illsutrate with Inspiration
Make it Vivid
- In The Details
Find a scripture you want to journal while doing your daily scripture study. Look for somethign that jumps out to you and speaks to your heart. Listen to the Holy Ghost. He will guide you to the right scripture. I chose Moroni 10:2-5.
Cut out the sripture you’d like to use out of an inexpenive extra missionary copy of the Book of Mromon. (Actually to do this properly you’ll need two Books of scripture – one for the front sides of the pages and one for the back side of the pages.)
Glue the scripture to a page in an art journal. I used a journal with watercolor paper so I could use water-colors and other mediums in it.
Mark the scriptures with the words and phrases you want to highlight or that are especially meaningful to you. For this I use Staedtler Triplus Finelliner Pens because they have an exceptionally small felt tip point and don’t bleed easily.
Using watercolor colored pencils, draw your thoughts on the scripture in words and images. This really made me think about the deeper meanings contained within the versus I chose.
If you are using water colored color-pencils, next go over all your drawings with a paintbursh and clear water. This will make all the colors blend and appear more vivbrant.
Finally, go back over the words and other key drawings with felt tip, metallic, and other kinds of pens. Make sure you title the journal page with the scripture reference and date. Add a page number in the lower left corner, so that Iyou can make a table of contents of all the scriptures in the front of the journal.
Not only am I pleased with what I created, but I learned a lot more from this intense and creative study session than I had during many attempts to sit down and read scriptures.
Maintaining a testimony can be difficult when life doesn’t go the way we want, but I have a testimony that as we engage in our divine creative abilities we will realize our potential, purpose, and a relationship that’s closer to Heavenly Father and Christ than we ever realized.
The ever present hiss of oxygen and the occasional beeping of a monitor are sometimes the only sound I hear for hours, as I lay alone in my hosptial room. I stare at the white sterile walls that surround me. The walls are totally blank with few unnoteworthy exceptions. Sometimes I wish my life were as clean and as sterile as those walls, devoid of any adversitity. It’s an easy thing to wish for when I’ve spend more than half of the last year in the hosptial. If I could whitewash all the years spent facing the pain, lonliness, isolation, boredom, fear, anger, grief, and saddness that comes with a chronic illness that requires very frequent and prolonged hosptializations, wouldn’t I want to?
But then I remember what I am here on earth to do. I remember that my adversity and trials aren’t punishments; they’re gifts that allow me to improve myself, transform my weaknesses, and grow into the person I was always meant to become. I remember that adveristy is a blessed opportunity – even an invitation – from my loving Father in Heaven, to become more like my Savior and Redeemer, Jesus Christ. I remember that if I were able to whitewash my life and forget all my trials, I’d also forget all the knowledge and blessings that come from them.
It’s been easy for me to get bogged down in the weight of a trial, and completely miss what I am learning and how I am growing from it. Perhaps if I were more methodical, more intetional about learning from adversity, I’d be able to develop more from it. There are five things we all can do to gain more knowledge, growth, and blessings from the hardest things in life.
- Seek Guidance
- Conduct Research
- Count Your Blessings
- Serve Others
- Do It Together
It’s a lot easier to learn something when you figure out what you are learning. Recieve guidance as to what’s there to learn from life’s hardest moments. Sources of guidance can be close friends, family, religious leaders, professional counselors, scriptures and other books, and divine inspiration. I personally realize the lesson in every trial most easily when I read my scriptures frequently and pray unceasingly to my Father in Heaven to reveal to me what He wants me to learn. It reminds me that I am not in control, but that’s completely okay, because the one that is in control, my Heavenly Father, knows exactly what I need to learn, andhow I need to be blessed.
It can be hard to know what you’re learning if you aren’t tracking your course throught the trial. Record your journey in a journal. Look for patterns. Ask yourself and Heavenly Father questions. Pose hypothesis, and then experiment on the results. I recently suggested this to a friend struggling with social situations and feelings of not being included. Instead of thinking negatively about social situations, she tried thinking that people would perceive her in a positive way right before starting an converstation. So far the results have been an off the charts improvement.
When you remember to have an a attitude of graditude you get access to appreciating the good times and the bad. Being grateful even for your trials opens up your ability to grow and change for the better and help you learn so much more from adversity. When I take time to enummerate the ways being chronically ill has bettered my life, I am always astounded by all the good things that have come from it.
Getting out of your own head and focusing on helping others in need, gives you clarity and perspective that can shing light on what there is to learn from your trials. When I take the time to be a good listener for a friend going through something really tough, the weight of my own trials diminishes. As I lift their weight, Heavently Father lifts mine.
When you are in the depths of your trials, it’s easy to forget that you aren’t alone. Whether it other people going through similar things or knowledge of the divine on your side, walking foward hand in hand allows you to both receive and share knowledge and blessings. My default mentality is that I have to do everything hard alone (also that I’m alone in my trials). The good news is neither are at all true. And not only do i not have to do everything alone, but it’s completely impossible to do so. In fact, this life was *designed* to teach me (and all of us) not to do it alone. Instead I should rely on Christ, his teachings, and his disciples to get me through everything, from the smallest of small to the most miraculous triumphs that aren’t even imaginable to my feeble mortal minds. And we are the opposite of alone in our trials, we have a brother in Heaven that has a *perfect understanding* of what we are going through. I don’t even have a perfect understanding of what I’m going through, but through Christ I can start to come to an understanding.
In what ways do you gain knowledge and blessings from your trials? Please share in the comments!
A balloon slowly twirls in the corner of my room in the ICU. “Get Well Soon!” it proclaims, in its bubbly font pastered on a backdrop of a smiling kite floating above smiling flowers.
I am grateful to have it cheering up the overwise sterile and dull place I’ve called my home-away-from-home five times in the last year alone. I am grateful to my thoughtful friend who brought it when she visited several days ago. But the truth is life doesn’t fit neatly into phrases we so often use to comfort our loved ones when a major life trial afflicts them. For me, “Get Well Soon” is a lie. I won’t be well soon. Yes, I’ll recover from this hospitalization, but I live with several serious chronic illnesses that will most likely sent me back to the hospital again. When “getting well soon” isn’t possible, the challenge is to find insight, peace, and even gratitude in my situation.
I firmly believe that we are faced with trials on this earth, so that we can learn lessons we couldn’t learn any other way. Through my illness I’ve learned patience, compassion for other’s trials, and trust that my suffering is all for a purpose and even brings blessings. Nothing would have taught me patience, for example, quite like waiting through seemingly endless and prolonged hospitalizations. I couldn’t have learned to have as much compassion, had I not suffered myself and felt the pain and loneliess of chronic illness.
I have even found blessings in my trials with chronic illness. As I was forced to adapt and find new interests, I discovered my passion for writing novels, my love of web and graphic design, and, most importantly, my faith in Christ when I was baptized into The Church of Jesus Christ of Latter-Day Saints. All these things came to be in my life directly as a result of my chronic illnesses. They have blessed me in more ways than I can number, and especially blessed me with a sense of a life calling, purpose, and knowledge that I am not alone. Realizing these blessings give me insight into the person my trials are helping me to become, a person I couldn’t have learned to be without these trials.
Knowing that trials have brought me great blessings fills my life with peace, purpose, and meaning. And I am grateful for the role of trials in my life to make me a better person. I am grateful for the ability to bless the lives of others that I learned from these trials. I am grateful for my testimony of a loving Heavenly Father and Savior, Jesus Christ, that I’ve learned from experiences I’ve had being sick.
As I look to the bigger picture, I see the role these trials play in becoming the best person I ultimately can be. I may not “Get Well Soon”, but as I look beneath the harsh surface of life with multiple serious chronic illnesses, I’ve come to recognize that, on many levels, things are already “well” with my life. And as I strive to find insight, peace, and gratitude in the face of my trials, all will be well.
What do we do when our understanding of our circumstances eludes us and puts our faith in peril? How can we turn our doubt into a tool to grow closer to our Heavenly Father and our Savior Jesus Christ? I recently discovered that it is from our most vulnerable place of complete doubt and uncertainty, that upmost faith and surety is the Gospel is available.
I received a blessing for a medical procedure that promised that i would be blessed that it would all go without complication. When that didn’t turn out to be the case, I couldn’t be help but question my own faith. Maybe I just didn’t have enough faith to receive that blessing. Not only was I suffering the physical effects of my unfortunate circumstances but I was filled with fear. Doubts swirled through my head. Maybe I couldn’t trust myself to have the faith required to receive the blessings I most desperately want and need. Maybe I let my own fear get in the way. Or maybe God didn’t want me to have that blessing for some reason.
I sought out comfort in prayer from my Heavenly Father asking why I had to be stuck in the hospital once again for a prolonged period when it was supposed to be a one day procedure. Though I didn’t get my answer right away I was comforted through the power of the Holy Spirit telling me that The Lord works in His own time and for His own reasons. There was a reason for even this even if it was not yet clear to me.
It didn’t start to become clear until about a week later. Still in the hospital another complication caused me an incident of severe and dangerous bleeding, that landed me back in the ICU. It was then that I realized that if I had been stuck in the hospital in the first place then, I wouldn’t have been in the safety of the hospital when I had started bleeding profusely and the outcome might have been much worse.
It is much the same spiritually. When we are in the safety of the Gospel in the loving arms of our Heavenly Father and Jesus Christ, we can bleed out all the doubt and woes of our life until we are weak and can barely stand. Then Christ will be right there to support us. He has already bled the same blood and so much more for us. He has felt all the pain. He is the Great Physician who will cure us and make us whole and complete again, so that we may return again. Once we’ve hemorrhaged out all our doubts, we are ready to be so much more like Heavenly Father and our Savior Jesus Christ. Even blessings that seem to fall short in our lives are opportunities to grow in the Gospel is we but turn to Christ, take His hand, and open our hearts, continually seeking the Father, repenting of all our doubts and sins, and seeking the divine healing of The Lord!
Life is hardly ever what we expect it to be. The harder we try to plan out our lives, the more God shows us that He has bigger things in store for us. Like when you try to hold sand in the palm of your hand. Relax your grip completely on your life and the pieces of your life all fall through the cracks. Plan your life too tightly and it all starts to slip through your fingers despite your best efforts. But God’s hands are infinite. He can hold all the sand of our lives and more. He won’t let any sand slip away if we allow Him to help us hold it. We simply have to turn to Him and ask for His help, love and guidance in ALL things.
Sand in it’s size is much like the minutia of our lives. Tiny in the grand scheme of things. When struggling to hang on to the little granules, we often forget to pull back and see the larger picture. We are worried about loosing a few grains of sand when we are standing on the beaches of infinite blessings if we would only look around and realize it. Not that each grain isn’t important, but we shouldn’t let it distract us from remembering who we are and where we are going as divine children of Heavenly Father on our journey back to Him.
But in the topsy turviness of life, all this is all to easy to forget. And suddenly you aren’t just loosing sand, you’re up to you’re being consumed, even suffocated by it.
A few months and a lifetime ago… or back in November, I celebrated my 30th Birthday with a Mocktail Soiree. I was surrounded by numerous friends and family and had a wonderful time. I was in good health, and I was able to walk around the party. That night was a high point for me, and I had no idea I was headed for a very low point just a week or so later. I had plans for how I would spend the next several months. Plans I intended to keep.
Then a series of events led to a serious health decline that landed me in the hospital with my life at stake. A series of serious infections caused the autoimmune disease I have, Myasthenia Gravis, to flare making me unable to breathe on my own so that I required a ventilator just a week after my party.
Life is strange. Unpredictable and sometimes difficult to comprehend.
As I fought for my life in the hospital, some might wonder if I was left asking why God would allow me to withstand this hardship. Why would God allow me to suffer so much? And if that’s the case, what does it say about God?
To which I would answer, I asked nothing of the sort. Though it might be tempting to blame God when things go “wrong” in our lives, that is an entirely counterproductive approach. Heavenly Father provides us trials in our lives as a backdrop against which to bloom and grow. Without it we would never progress and become more like our divine parents. My health trials have given me a chance to learn things about myself that I may not have otherwise (or may have taken much longer to learn otherwise). I have become more sensitive to the needs of others and to my own needs. I have become more introspective and intuitive. I have gained faith and perspective that even the seemingly worst things come with spiritual gifts.
He also gives us trials as a chance to practice choosing and agency – or being utilizers of His gift of freewill. When we exercise our divine right of freewill and choose good, we can grow closer to Heaven Father.
It is hard to see this larger picture when in the moment. Just like it is hard to see the beach for what it is when grappling with the granules of sand. But when we put the sand of our lives in God’s capable and infinitely wise hands the landscapes of eternity will become more apparent to us. And for that we will be blessed even more than we can fathom now.
“And ye cannot bear all things now; nevertheless, be of good cheer, for I will lead you along. The kingdom is yours and the blessings thereof are yours, and the riches of eternity are yours.
And he who receiveth all things with thankfulness shall be made glorious; and the things of this earth shall be added unto him, even an hundred fold, yea, more.”
It’s been a long nine weeks. Another nine long weeks I’ve spent in the hosptial with whole month spent in the ICU. I’m supposed to go home in the morning finally. I’m hesitantly relieved. I don’t want to be disappointed.
Being in the hosptial for any period of time is really hard. Probably one of the hardest if not the hardest thing I’ll ever have to do. Espeically when the stay is super long and the reason is life threatening involving ICUs, ventillators, comas, and the like, it’s especially important to feel the love of those around me, to know that I am not alone in this.
And my friend and family have really risen to the occasion over the last 9 weeks. I couldn’t be more grateful for everything they’ve done for me. They have been my emotional and spirital life support while on physical life support most of the time in the hosptial. I can’t thank them enough.
When your friend or family memeber is extremely ill in the hosptial and ICU it’s hard to know what to do or say. Here’s some of what I appreciated the most to serve as an idea guide to helping support someone through a rough hosptial stay:
- Call or text ahead.
Let the person or the family memeber staying with them that you are coming so they can be prepared or let you know if its not a good time. For example, the person might be in a proceedure or be sleeping when you plan on coming.
- Ask what you can bring. Often times ICUs have restrictions on live flowers and other things that can be brought in. Very sick patients often have dietary restrictions, allergies, or simply aren’t eating at all. Don’t be afriad to come right out and ask what the situation is before you bring something. Your thoughtfulness will be appreciated.
- Bring reminders of life outside the hosptial. The most amazing awesome thing my friends did for me was decorate every inch of my room with photos and artwork and Christmas decorations for the holiday. My friend Katy took photos off my own facebook accooutn and got them printed out and posted them in a giant collage covering an entire wall under the window to remind me of all my friends and happier times. I have photos of my dog, myself as a kid doing fun things, my family, and other fun stuff. She also took a calendar with photos of Christ which is extremely important to me as a member of the Church of Jesus Christ of Latter Day Saints and got them laminated then hung them all over another wall. That allowed me to feel the Spirit of God in my hosptial room and be constantly reminded of my Savior’s and God’s love for me. Other friends decorated for Christmas since I spenddt the holidays in the hosptial as well. They put up gingerbread men, wreaths, garlands and more. My mmom got me a tiny Christmas tree and a star. My room had to have been the most amazingly festive of the whole hosptial because everytime anyone came in to give to a treatment or do a proceedure the ooo’d and ahh’d over my decor! It brought joy to everyone who entered my room, and especially me! I am so grateful to everyone who took the time to do it
- Promote Health If you think that you are sick, don’t come and visit! A person in the hosptial has a weakened immune system and can get much worse from a simple cold.
- Remember Their Other Family and Pets If you can offer to help out with their other family members who may also need things during this time as well as their pets who don’t stop needing walks, love and attention while your friend is in the hosptial for prolongued periods.
- Listen and Love The most important thing you can do is just listen, love and otherwise be a emotional and spiritual support while your loved one goes through this hard experience. They need your listening ear to vent sometimes, to cry sometimes, to worry, and be angry sometimes. They need your kind words to comfort always, to remind them you love them always, to be in their corner always, to boost them up when they are down, and to always be their friend and support and cheerleader. Remind them how much they are loved and missed by everyone else.
- Visit!!! Phone calls and texts are great, but nothing beats an in person visit when you are lonely and scared in the hosptial for long periods of time. And the longer the hosptial stay goes on the worse it feels, but the less people tend to remember to come because the novelty of it starts to wear off. Don’t forget your friend is still going though it in the hospital just because it’s been going on for 2 months!
- Don’t Unload Don’t tell the person in the hosptial how hard it is for you to see them in the hosptial. It only makes the patient feel like a burden. Of course you are worried and stressed yourself but make sure you talk about it with someone who isn’t as close to the person as you are and definitely not the patient themselves.
- Be Yourself If all else fails just be yourself. The person that the patient missed from when they were well and wants to see is YOU! Don’t overly worry about what to say and how to act. They just miss you and want to be with their friend or family member. They want your company and comfort that only you know how to give because you are the only person who is you. The worse thing you can do isn’t to say or do the wrong thing but to do nothing and make the patient feel completely forgotten about and abandoned by you.
- Bring Them Home! When your loved one in the hospital makes it home, don’t forget about them then either! They often will be stuck at home for some time and need just as much love and attention brought to them there as they did in the hosptial. So bring them home!
I am so grateful for my friends and family who did everything I just described above and so much more! They made it possible for me to emotionally and spiritually survive this hosptial stay. It really wouldn’t have been barable without all of you so thank you soooo much!!! I am especially grateful to God and Christ. They are always there for me and I know that this too shall pass and even this difficult trial I have endured will be for my benefit. I know it is slowly and rather painfully shaping me into who I am to be someday. But the pain was made less by some photobombs and a lot of love from friends and family.
Thank you! Thank you! Thank you! Thank you!!!!!!!
Wouldn’t it be amazing if, during our darkest hour, we could reach under our bed and open up a box of hope? A “box of hope” could be a figurative thing that we reach inside ourselves or out to God to find. But sometimes you need something more. Sometimes you need a literal box of hope. And that is just what I created for myself during my darkest hour.
When I was 16 years old, during my senior year of high school, I was immersed in a deep and serious clinic depression. My Obsessive Compulsive Disorder had just been diagnosed but was not yet under control. I had constant intrusive thoughts of hurting myself – of ending my life.
Looking back I really had amazing self control on the whole. But I could only handle so much. The second time I caved in to the constant bombardment of intrusive images of self-harm, and I ended up cutting myself using razor blades my parents had forgotten to hide out in the garage.
Afterward I was on the phone with my therapist at the time. She was telling me I was at a crossroads… that if I chose to continue down this path of cutting I would probably end up in a hospital. I wasn’t really listening to what she was saying. Instead, I was transfixed by what was sitting on the desk in front of me – the candle-lighting piece my mom had made for my younger sister’s Bat Mitzvah. She had glued this tiny shells all over the outside of it go with my sister’s tropical theme. And it struck me then with incredible intensity how very beautiful those tiny shells were – how simply amazing it was that something SO tiny could be SO beautiful. And if something that tiny in life could be that beautiful… well all of life was beautiful and precious as well.
I rushed to get off the phone with my therapist. I knew that I had to find a way to hang onto this feeling. I had stumbled upon my internal box of hope! But I knew that it wouldn’t be easy to tap into again. I had to find a way to make it physical while it was fresh in my mind. I had to find a way to remind myself of this epiphany every day because I knew there would be many dark days ahead where I would desperately need to draw on my box of hope.
So I had my mom (who is good at crafty things) help me cover an old shoe box with some bright pretty wrapping paper. I wanted my box of hope to be private and inconspicuous on the outside. I didn’t tell her what it was for, but perhaps sensing my urgency she kindly helped me anyway. Then I took the box upstairs to my room and set to work.
Going through pictures and old magazines I decorated the inside of the box with things I wanted to do with my life, places I wanted to travel, people who cared about me, things that filled me with hope. I hadn’t yet found out if I had gotten into USC Film School (a few months later I did), so I put a picture of a director’s chair with “USC Alumni” written on it. I glued in some of the very shells that had led me to make the box to remind me of how beautiful life could be.
I put a picture of myself as a child to remind myself of happy memories of my childhood innocence. I was obsessed with The X-Files and desperately wanted to know how it would all end, so I put a picture of that as well.
Most importantly I wrote in large purple letters:
I CHOOSE TO CONTINUE LIVING
I WILL GET THROUGH THIS
Then it was time to fill the box. Inside I placed a smiling drama mask to remind me of my love of theater and the creative arts since creativity had always sustained me during dark times and given me something to look forward to.
Next went the rug I wove myself while learning about Native Americans in elementary school. I had always hated looking at it when I was younger because I hadn’t done it perfectly like my best friend Jennifer. But over time I came to love it for it’s imperfections. In the box, it reminded me that imperfection could be beautiful too!
I put in a bracelet I made when I was 11. All the beads were pretty by themselves but together well… it reminds me that you can have too much of a good thing. But also to have fun and to have a sense of humor in all things.
Second to last I put in a rope I tediously made myself during Outdoor Education in 5th grade. I spent over an hour with my hands going numb in an icy cold river laboriously pounding all the moisture out of a reed before braiding it into a rope. It reminds me of the power of hard work. And the rope itself, which could hold my whole body weight, reminds me to always be strong.
Finally I included a letter that saved my life one day. I was home alone after school and feeling very suicidal. I was searching for a knife to cut myself with. Suddenly, I had a prompting to go check the mail before I got any further. I almost never received any mail, but on that very day the following letter was there for me.
I cried when I read the letter. It quite possibly saved my life that day. I stopped looking for a knife and starting trying to figure out who could have sent it. I didn’t think about hurting myself at all for the rest of that day. The letter reminds me that I am loved even when I don’t realize it or it doesn’t feel that way, and that God is there working miracles in my life.
I looked at my box of hope every day for about a year. It got me through a lot of very dark hours and days and months. Then there came a time when I could carry my box of hope around with me in my heart, and I didn’t need to look at it so often.
Now it mostly sits in my closet, but I always know it is there if I need it. But today I was talking with a friend who is going through a very dark time in her life, and I told her about it. I offered to send her photos of it, but, I thought, why not go a step farther and share it here? Perhaps there is someone else who needed a little box of hope today.
I first published this post on my Box of Hope in 2010 on my now mostly retired blog, NovelPatient which chronicled my life with multiple chronic illnesses. At the time, I was surprised by how positively the post was received. I have since realized that everyone needs a box of hope to draw on in times of trouble. For most people that box is figurative. But for me… my hope is now something I can pull out of the closest whenever I need it. I can wrap myself in my blanky and see, feel, smell and touch the contents of box, encircled in eternal hope.
Has anyone else made a box of hope or something similar? Please share and post about it in the comments!